Stories

With the creation and reclaiming of hashtags, which are both the starting points and the drive belt of these writings, we hope to bring out words that will open us up — to ourselves and to others. In this movement of words, we believe that an ecology of women’s pain can emerge, thus breaking the silence, the isolation and the immobility of many women who suffer.

Lydia Ruffles
#migraines

Real pain in your head is unlike pain anywhere else. It can’t be pushed away or held at a distance. You are the pain, indivisible, fighting for the same oxygen.

The Taste of Blue Light
2017
Cory Taylo
#brain cancer

I wonder, for instance, if our laws reflect some deep aversion amongst medical professionals here towards the idea of relinquishing control of the dying process into the hands of the patient. I wonder if this aversion might stem from a more general belief in the medical profession that death represents a form of failure. And I wonder if this belief hasn’t seeped out into the wider world in the form of an aversion to the subject of death per se, as if the stark facts of mortality can be banished from our consciousness altogether.

Dying
2017
Siri Hustvedt
#migraines

I am a migraineur. I use the noun with care, because after a lifetime of headaches, I have come to think of migraines as a part of me, not as some force or plague that infects my body.

Living, Thinking, Looking
2012

Stories

#migraines
#douleurchronique
#cancer

Deux heures après la crise, personne ne peut soupçonner ce que j’ai vécu. C’est un calvaire invisible. Encore plus difficile à vivre. Les regards soupçonneux. Les suspicions de mensonge, d’exagération, de tricherie. Un ennemi qui ne laisse pas de traces de son passage. Mais qui dévore. Lentement. Il prend son temps. Je l’ai appelé le Vampire. Après tout, il attaque souvent la nuit. Et nous entretenons des rapports ambivalents. Ou bien quelqu’un qui enfoncerait un crayon dans votre œil et essaierait de former des figures. Chaque fois une nouvelle. À moins qu’il ne s’agisse d’un vaste projet général, cosmogonique. Parfois, je m’interroge sur ce dessin. J’essaie d’en percer le tracé. Peut-être, si je comprenais ce qui est dessiné, les crises ne reviendraient plus

Laure Limongi
Anomalies des zones profondes du cerveau, 2015
#migraines
#douleurchronique
#cancer

crip non haiku
He said you didn’t seem like yourself that day
I said this is my self
crunching my forehead to stay in the palace of words
Lamaze breathing through pain strikes
asking for a Vicodin with a shaking hand

Leah Lakshmi Piepzna-Samarasinha
Bodymap, 2015
#migraines
#douleurchronique
#cancer

Prisonnière de ma propre cage.bien aménagée.Inlocalisable

Alix Cléo Roubaud
Journal
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